It's funny how the things I thought I could never get use to are a part of who I now am. Some of my normals include:
- Waking up ready to down a large quantity of water before getting out of bed to relieve an already full badder.
- Dealing with nausea every morning, and not getting a precious bundle of joy after 9 months of morning sickness.
- Wearing compression stockings at the young age of 49 instead of the ripe old age of 70.
- Parking in the handicapped parking, and being ready to defend myself when someone questions why someone who doesn't look handicapped is using the spot. My fists are clenched and ready to fight. My fighting techniques would get anyone rolling on the ground in laughter, and they would probably walk away wondering if the state considers the insane handicapped, and that's how I acquired my plates.
- Purple, my favorite color, how many people can say that their hands and feet show off their favorite color every day.
- Always being prepared that bending over to pick up something off the floor, may leave me looking and feeling like a drunken sailor.
- Accepting the fact that during my drunken sailor state, others may be questioning my sobriety.
- On those days when oxygen is in short supply, it's ok that my sentences will usually be incomplete and end with an ahhhhh what's that word? Or what's his name? Or even what's your name?
- Using a pill box with the days of the week stamped on it doesn't make you old.
- When my heart is racing through my chest and I'm short of breath, I just pretend that I just ran the 6K.
- It's ok to be flopping out of the bathtub like a fish out of water ( I can see my gills, oh I mean nostals gasping for air) because of my heat intolerance and gravity issues.
- Wearing a medical id tag can be fashionable with a little web searching.
- Asking for help actually makes a task more fun.
- I believe I know more about the auto immune system than most doctors.
- I won't get arrested for breaking some sort of health law for eating salty snacks and adding a ton of salt to my food.
- Being white because of the lack of sunshine is the "new black" of fashion.
- Icevests may not be a fashion statement, but they do attract hugs.
- Eating 6 meals a day won't cause obesity.
- Some times it's worth the price of a day in bed to do the thing you love most!
Living with dysautonomia has been challenging, but I'm getting use to my new normal. As most of you know I love the serenity prayer, one part has always stumped me "accepting hardship as a pathway to peace". How could hardship lead to peace? Well in my case, it's the accepting of the hardship of dysautonomia instead of fighting it that has made my life more at peace. I still have those days when the symptoms are difficult to carry, but that's when I rely on friends to carry the burden with me.